Measuring Transplant Outcomes by Collecting Data on Children Born to Uterus Recipients
Status: Committee Review
Sponsoring Committee: Vascularized Composite Allograft (VCA) Transplantation
Strategic Goal: Improve waitlisted patient, living donor, and transplant recipient outcomes
Read the request for feedback (PDF; 01/2020)
Contact: Tina Rhoades
At a glance
What is current practice and why address it?
Uterus transplantation in the U.S. is rapidly growing. As such, the health of the recipient and post-transplant outcomes is a key concern to the OPTN and the transplant community. Currently, very little data about children born to women who have had a uterus transplant is reported to the OPTN, and only on a voluntary basis. In order to monitor post-transplant outcomes and the health of the recipient, feedback is requested to inform a future project about what data to report on children born to uterus transplant recipients.
What’s the concept?
- To consider what, if any, additional, appropriate data that could be reported about children born to uterus transplant recipients:
- At birth
- As follow-up
- Consider how long after birth should information be reported.
- Identify any challenges a requirement to report additional information could present.
What this feedback could accomplish
- Could help develop future data reporting requirements.
What this concept wouldn’t do
- Collect unnecessary data on children born to uterus transplant recipients.
- Mandate data collection at this time.
Terms you need to know
- Vascularized Composite Allograft (VCA): Transplant of multiple structures, which may include connective tissue, skin, bone, muscles, blood vessels, and nerves. For example, face and hand transplants are two of the most well-known types of VCA transplants.
- Click here to search the OPTN glossary.