Measuring Transplant Outcomes by Collecting Data on Children Born to Uterus Recipients

Proposal Overview

Status: Committee Review

Sponsoring Committee: Vascularized Composite Allograft (VCA) Transplantation

Strategic Goal: Improve waitlisted patient, living donor, and transplant recipient outcomes

Read the request for feedback (PDF; 01/2020)

Contact: Tina Rhoades

At a glance

What is current practice and why address it?

Uterus transplantation in the U.S. is rapidly growing. As such, the health of the recipient and post-transplant outcomes is a key concern to the OPTN and the transplant community. Currently, very little data about children born to women who have had a uterus transplant is reported to the OPTN, and only on a voluntary basis. In order to monitor post-transplant outcomes and the health of the recipient, feedback is requested to inform a future project about what data to report on children born to uterus transplant recipients.

What’s the concept?

• To consider what, if any, additional, appropriate data that could be reported about children born to uterus transplant recipients:
  • At birth
  • As follow-up

• Consider how long after birth should information be reported.
• Identify any challenges a requirement to report additional information could present.

What this feedback could accomplish

• Could help develop future data reporting requirements.

What this concept wouldn’t do

• Collect unnecessary data on children born to uterus transplant recipients.
• Mandate data collection at this time.

Terms you need to know

• Vascularized Composite Allograft (VCA): Transplant of multiple structures, which may include connective tissue, skin, bone, muscles, blood vessels, and nerves.  For example, face and hand transplants are two of the most well-known types of VCA transplants.
• Click here to search the OPTN glossary.